Fred.

Kyle had his first neurosurgery consult at one week old. We decided right away that the surgeon was our favorite doctor among his medical team. He was to the point but also compassionate and hopeful about Kyle's long term prognosis. We were told to expect many appointments at the surgery clinic and regular quick brain MRIs to monitor cyst size and to ensure there were no signs of raised intracranial pressure. He showed us how to check the soft spot for firmness and the skull sutures for separation and told us to call him right away with any symptoms of ICP, such as vomiting or excessive sleepiness.

One of the concerns early on in Kyle's prenatal diagnosis was the type of cyst he had. It was thought that he had a very rare type of cyst. When we expressed our concern to the surgeon, he said, "Let's just call it Fred.". It didn't matter and treatment was the same regardless. We've been referring to it as "Fred" since.