On Monday, Kyle was sleepy and pukey. So, we made another trip to visit our ER friends and had another MRI. The last MRI showed a return of Fred but also a decrease in the fluid/blood collection around his brain. This MRI showed a similar cyst size but also a second cyst growing beneath Fred.
Kyle's surgeon is "concerned". We've learned over the past few months that the surgeon has three levels of concern. "I'm not worried" means, "yeah, there's something abnormal but I don't think we'll need to operate anytime in the near future or maybe even never". "I'm concerned" means, "Prepare yourself. We might need to operate soon". And "I'm worried" means.... well, we don't want to know what that means.
So, he's "concerned". Darny darn darn DARN.
On the bright side, he's "hopeful" that we can still avoid the OR. We're hopeful, too. It's nice to have a hopeful surgeon. We aren't complaining there.
So the plan is to have a follow up MRI in four weeks to see if there is further cyst growth and go from there. I'm worried and I'll admit even a little scared. I don't want my baby to have a second brain surgery. I don't want him to have ANY surgery.
Lately I've been asking the why question. Not the genetic logistics of how this happened but the spiritual "why did this happen???". And I've learned that "why" is a joy stealer. A theif. A common criminal. It takes joy and turns it to pain. And it takes the focus away from the questions we should be asking.
Like "who". Who is my child? Kyle is a child of God. A child born into this world with a purpose and a plan. What is my child? He is a happy little boy who loves to smile, laugh and play. He smiles at everyone, even the tech that straps him onto the MRI table.... over and over again. He smiles at the nurse that starts his IV. And at the surgeon that decides if or when he will have to endure another operation. In the words of big brother Michael, he is a delight.
And we are thankful.
Great looks. Bright future. We believe it!
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