Today Kyle turned 10 months old. We can't believe that our sweet boy is so quickly approaching his first birthday.
His PT sessions have increased from one session every other week to once per week. He is making a lot of progress! He can roll both ways, sit up without support and army crawl- all milestones we were told that he might not ever meet. He is currently working on learning to push up to sitting from his side and balancing himself on all fours. We are so proud of him!
He sees the neurosurgeon again on March 3rd. Thankfully, he isn't having a MRI- only a quick head measurement and exam. His head circumfrence increased a little more than we wanted between his last two appointments. A steady abnormal increase is a red flag for rising intracranial pressure, so we are praying that there isn't much change this time around. The surgeon will also examine the cyst that is slowly growing on the back of his skull. If it continues to grow, he will need a minor surgery to remove it.
He saw the ophthalmologist for a check up last week. She was genuinely surprised at how well he is developing and didn't see any cause for alarm regarding his eyesight. He doesn't see her again for another year! He also had a hip xray last week to rule out hip dysplasia as a cause for the reduced movement of his left leg. We were relieved when it came back normal! His pediatrician still wants him to be evaluated by a pediatric orthopedic surgeon but we are confident that he does not have any orthopedic concerns.
He also has been referred to a pulmonologist for evaluation for reactive airway disease. This is a scary sounding way of saying "baby asthma". He does fairly well but requires nebulizer treatments any time he is ill and occasionally has short periods of apnea while sleeping. We believe these episodes are related to acid reflux but his pediatrician ordered a sleep study to further evaluate this issue. This has been scheduled for late March.
So, lots of doctors and appointments coming up! But he is doing so well and we are so thankful!
What's next?
- Neurosurgeon March 3rd
- Pulmonary sleep study March 29th
- MRI in early April or May
- Neurology follow up in late May
- Orthopedic Surgery consult
- Pulmonology consult
(His mother needs to schedule these!)
Thank you for your prayers!
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